Welcome to the community and resource library for Parenting Kids with CHD. This includes a collection of on-demand videos that you can watch, pause, and review any time that is convenient. You'll also find parent-friendly summaries of scientific studies relevant to everyday life. Resources are backed by science, and they provide practical information. Each month this library will grow to include a range of topics for parents of infants to young adults. The goal is to increase your knowledge and resources for supporting neurodevelopment and emotional wellbeing, while being part of a community that builds connection.
Check out the FREE video library below. Also visit the blog page. Join with a monthly membership subscription to get full access.
Welcome! I'm so glad you're here.
After many years of listening to your stories and concerns, I’ve come to understand that there isn’t enough support for parents of children with CHD, and that too few providers truly understand CHD.
Since 2012, I have worked with children and teens with CHD and their families, and I've participated in multi-center neurodevelopmental outcome research. It’s time to try something new - to increase your access to more practical information and resources. I'm hoping you'll join and help build a new kind of community for Parenting Kids with CHD.
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