Understand what you're seeing, know what questions to ask, and make informed decisions about the support that fits your child and family.
Strong hearts grow with supported parents.
Maybe you're wondering about your child's development, attention, learning, emotions, behavior, or independence. Maybe you're trying to understand what's related to CHD, decide whether it's time to seek more help, or figure out how to work with your school, therapist, medical team, and other providers. You don't need to figure everything out at once. The online resources at Parenting Kids with CHD will help you:
Learn about neurodevelopment, learning, emotions, behavior, and the many ways CHD can intersect with development.
Find practical guidance for evaluations, school advocacy, supporting emotional wellbeing, communicating with providers, and other decisions families face.
Access the full on-demand resource library and live online, Q & A sessions that can support you as your child's needs change.
Parenting a child with congenital heart disease brings unique challenges. Sometimes it's difficult to know whether to step in and help, offer an accommodation, or encourage your child to work through a difficult experience.
In this live FREE parent session, we'll explore how emotions influence both children and parents, and how to recognize the difference between support that helps your child grow and support that may lead you to feel stuck.
We'll also consider how neurodevelopmental differences and medical experiences shape what children need from us.
Join us for a practical, research-informed conversation about supporting your child while building flexibility, confidence, and independence.
For more than a decade, I've worked with children and teens with congenital heart disease and their families as a pediatric neuropsychologist and participated in multicenter research studying neurodevelopmental outcomes in CHD.
Along the way, I've heard the same thing from families again and again: It can be difficult to find practical information about development and emotional wellbeing from someone who truly understands CHD.
I created Parenting Kids with CHD to help bridge that gap—translating what we know from research and clinical experience into information parents can actually use.
You know your child. My role is to help you better understand the science and navigate what comes next.
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