Parenting Kids with CHD/School Advocacy: CHD Parent Navigation Guide

  • $29
  • $19.99/mo

School Advocacy: CHD Parent Navigation Guide

  • Course
  • 11 Lessons

A practical guide to navigating school support for children with CHD. Learn how to recognize common neurodevelopmental, emotional, and social challenges, and use school friendly language to request effective accommodations. Learn simple, practical tips for managing homework stress. Consider whether you may need an educational advocate and how to find one. Includes scripts/templates and handouts to help you advocate.

Contents

Part I. Gaining Perspective

Understanding the big picture about the school and creating a big picture about your child

  • How school support works

  • Help the school understand your child

  • The Advocacy Framework

School Advocacy Navigation Guide_Part 1.mp4
Scripts to Request New Services.docx
Scripts to Update or Change Plan.docx
Sample Letter to Request Evaluation at School.docx
Congenital Heart Disease and Learning_Handout for School Teams.pdf

Part II. Common Challenges and Accommodations

Understanding Your Child's Needs and What Actually Helps

  • Attention and executive function

  • Processing speed and cognitive efficiency

  • Emotional regulation and anxiety

  • Learning and memory

  • Social and communication

  • Sensory and self-regulation

  • Medical and fatigue

  • Behavior challenges

  • Reading, Writing, Math

  • AND: More about Social Challenges

School Advocacy Navigation Guide_Part 2.mp4
Common challenges and how to support them.pdf

Part III. Homework Battles

What really going on and what helps.

A 6-step practical, simple plan to support homework.

School Advocacy Navigation Guide_Part 3.mp4
Homework Battles.pdf

Part IV. Is it time for a professional advocate?

Recognizing when your efforts as a parent have been exhausted and what to do next. Understanding and finding an educational advocate.

School Advocacy Navigation Guide_Part 4.mp4
Getting Help - Educational Advocates.pdf