Blogs for Parents of Kids with Congenital Heart Disease (CHD)

  • Saturday

Why Does My Child With CHD Hold It Together at School but Fall Apart at Home?

    Why does your child fall apart after school? Learn how masking, fatigue, ADHD, autism, anxiety, and CHD may contribute.

    • Jul 28

    Why Can't My Child with CHD Remember What They Learn?

      Why do some children with CHD forget what they learn? Explore how attention, memory, and learning work together—and what parents can do to help.

      • Jul 3

      What Does CHD Research Mean for My Child?

        CHD research informs care, but it can't predict your child. Learn how to interpret research and apply it to your family's unique journey.

        • Jun 4

        The Question Almost Every CHD Parent Asks... "Why?"

          What if the most important question isn't "Why is my child struggling?" but "What does my child need right now?"

          • Jun 2

          Siblings of Children with CHD

            Siblings of children with CHD often adapt quietly—showing strength, empathy, and resilience. But their needs can go unseen. Learn how to better understand and support their experience.

            • May 1

            Supporting Independence in Teens (and Preparing for the Transition to Adulthood)

              You’ve spent years stepping in to protect your child with CHD. Now comes the harder shift—stepping back. Learn how to build independence across daily life, not just healthcare, and support your teen’s path to adulthood.

              • Apr 10

              Curious about Autism?

                Autism can be harder to recognize in children with CHD due to subtle signs and overlapping challenges like anxiety or ADHD. Learn what to look for, why diagnosis can be complex, and how early understanding helps guide support.

                • Mar 13

                Curious about Learning Disorders?

                  Struggles at school don’t always mean a learning disorder. In children with CHD, learning challenges can be complex and easy to misinterpret. Learn how to identify true learning differences and what your child needs to succeed.

                  • Feb 20

                  Curious about ADHD?

                    Attention problems are common in children with CHD—but they aren’t always ADHD. Learn why symptoms overlap with learning, anxiety, sleep, and medical factors, and how understanding the “why” leads to better support.

                    • Jan 21

                    Understanding Anxiety in Children with CHD

                      As parents of children with congenital heart disease (CHD), you become experts at watching your child closely — their breathing, their color, their energy, their growth. That same careful observation can be incredibly helpful when it comes to your child’s emotional world, especially anxiety.

                      • Jan 21

                      Genetics and Neurodevelopmental Disorders in CHD

                        The relationship between genetic disorders and neurodevelopmental differences is complex. Some genetic syndromes are commonly associated with congenital heart defects, and it is not uncommon for children with CHD who also have a genetic condition to show differences in development, learning, or behavior.

                        • Jan 21

                        Understanding Medical Trauma in CHD

                          When a child has congenital heart disease (CHD), families enter a medical world that most never expect to navigate: intensive care units, surgeries, monitors, alarms, and life-altering decisions. While these experiences are often lifesaving, they can also be psychologically overwhelming. One important concept that helps make sense of this is medical trauma.